Understanding Plaque Psoriasis and Empowering Patient Journeys
Plaque psoriasis, a chronic autoimmune condition affecting nearly 2 million Americans, presents unique challenges for those living with it. The visible plaques and underlying inflammation can significantly impact various aspects of life, from personal relationships to career aspirations. Navigating doctor’s visits while managing the complexities of this condition can often feel overwhelming. Patients may struggle with medical terminology, hesitate to discuss sensitive issues, and find it difficult to effectively communicate their experiences to healthcare providers.
This article explores the challenges faced by individuals with moderate to severe plaque psoriasis and emphasizes the importance of patient empowerment through preparation, self-advocacy, and open communication with healthcare professionals. It also highlights the "SO, Have You Found It?" campaign, championed by actress Mindy Kaling, which aims to encourage individuals with plaque psoriasis to proactively seek treatment and find a plan that works best for them.
The Impact of Plaque Psoriasis:
The visible nature of plaque psoriasis often leads to feelings of self-consciousness, social anxiety, and isolation. The dry, itchy, and scaly patches can appear on various parts of the body, including the scalp, elbows, knees, and trunk, making them difficult to conceal. This can affect a person’s self-esteem, leading them to avoid social situations, limit their wardrobe choices, and even impact their career prospects.
As Dr. Jennifer Soung, a board-certified dermatologist, notes, "The impact of plaque psoriasis often weighs heavily on a person and their daily social interactions. Many people with moderate to severe plaque psoriasis find themselves altering their lifestyles, sometimes avoiding social situations and personal connections."
Emily, who lives with moderate to severe plaque psoriasis, echoes this sentiment. "I would avoid getting my hair done or wearing specific clothing, and avoided activities where I knew my plaques would be noticed, which was frustrating," she shares.
Preparing for a Doctor’s Visit:
Taking the time to prepare for a doctor’s appointment can significantly reduce anxiety and empower patients to take control of their healthcare journey. By proactively reflecting on their experiences, concerns, and goals, individuals can foster a collaborative environment with their healthcare providers, leading to more informed decisions and effective treatment plans.
Here are some key steps to consider when preparing for a doctor’s visit:
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Reflect on your experience: Take time to consider how plaque psoriasis is affecting your daily life. What are the most challenging symptoms? How does the condition impact your emotional well-being, social interactions, and overall quality of life?
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Identify your priorities: What are your goals for treatment? Are you primarily seeking relief from itching, a reduction in plaque size, or improved overall skin appearance? Understanding your priorities will help you communicate your expectations to your healthcare provider.
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Prepare a list of questions: Don’t hesitate to ask questions about your condition, treatment options, and potential side effects. Some helpful questions to consider include:
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What are the different treatment options available for plaque psoriasis?
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What are the potential benefits and risks of each treatment option?
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How will the treatment affect my daily life?
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How long will it take to see results from treatment?
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What are the potential side effects of the medication?
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How often will I need to see you for follow-up appointments?
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Document your medical history: Be prepared to share your medical history, including any other health conditions you have, medications you are taking, and allergies.
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Bring a support person: If you feel overwhelmed or anxious about your appointment, consider bringing a trusted friend or family member for support.
The Importance of Self-Advocacy:
Mindy Kaling, known for her advocacy work, emphasizes the importance of self-advocacy in healthcare. As the face of the "SO, Have You Found It?" campaign, she encourages individuals with plaque psoriasis to proactively engage with their dermatologists and find a treatment plan that suits their unique needs.
"Being in the public eye has magnified the importance of self-advocacy to me," Mindy explains. "Every day, I’m reminded of how being proactive and confident can determine how we show up and how we navigate the world. We have such an intimate relationship with our skin, in particular, and how it impacts self-perception. That’s one of the reasons I was drawn to the ‘SO, Have You Found It?’ campaign – and to helping empower others to advocate for their own health."
Self-advocacy involves actively participating in your healthcare decisions, asking questions, expressing concerns, and seeking information to make informed choices. It means taking ownership of your health and working collaboratively with your healthcare provider to develop a personalized treatment plan.
Open Communication with Healthcare Providers:
Open and honest communication is crucial for effective plaque psoriasis management. Patients should feel comfortable sharing their experiences, concerns, and expectations with their healthcare providers. This includes discussing the impact of the condition on their daily lives, previous treatment experiences, and desired outcomes.
"Patients should share their journey, their previous experiences, and what they hope to achieve with a treatment plan," Dr. Soung advises. "Highlighting how they have managed the condition in the past and proactively sharing a desire for an improvement in symptoms sets the stage for an open conversation about options."
By actively engaging in the conversation, patients can help their healthcare providers understand their individual needs and tailor treatment plans accordingly. This may involve exploring various treatment options, such as topical medications, phototherapy, or systemic therapies like SOTYKTU (deucravacitinib).
SOTYKTU (deucravacitinib): A Treatment Option for Moderate to Severe Plaque Psoriasis
SOTYKTU is an oral medication for adults with moderate to severe plaque psoriasis who may benefit from systemic therapy or phototherapy. It works inside the body to target the immune system and reduce inflammation.
Emily, after discussing her plaque psoriasis journey with her dermatologist, found that SOTYKTU was the right choice for her. "I have the freedom to express myself in new and different ways now. I can live my everyday life comfortably in my skin and being me," she shares.
Important Safety Information about SOTYKTU:
SOTYKTU may cause serious side effects, including:
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Serious allergic reactions
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Infections (including pneumonia, tuberculosis, and COVID-19)
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Increased risk of shingles
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Cancer (including lymphoma)
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Muscle problems (rhabdomyolysis)
Before taking SOTYKTU, it is important to tell your healthcare provider about all of your medical conditions, including if you have liver problems, kidney problems, high levels of fat in your blood, or have recently received or are scheduled to receive an immunization.
Conclusion:
Living with plaque psoriasis can be challenging, but by taking proactive steps to prepare for doctor’s visits, advocating for their needs, and engaging in open communication with healthcare providers, individuals can empower themselves to manage their condition effectively. The "SO, Have You Found It?" campaign, championed by Mindy Kaling, serves as a reminder that individuals with plaque psoriasis are not alone and that effective treatments are available. By working collaboratively with their healthcare team, patients can find a treatment plan that helps them reclaim their lives and live comfortably in their skin.
