JT Mestdagh: Overcoming Adversity and Inspiring Hope Through Philanthropy and Storytelling
JT Mestdagh is not your typical author. His life story is one of resilience, unwavering optimism, and a deep-seated desire to help others navigate the often-turbulent waters of life. Born with a rare and life-threatening condition known as VATER syndrome (VACTERL association), Mestdagh faced daunting medical challenges from his earliest days. Before even reaching the age of sixteen, he had already endured sixteen surgeries, a testament to his strength and the dedication of his family.
VATER syndrome, a complex disorder, presents a constellation of birth defects affecting various systems of the body. For Mestdagh, this meant a childhood marked by hospital visits, medical procedures, and the constant need for specialized care. However, his medical struggles were not the only hurdle he had to overcome. Mestdagh also grappled with severe dyslexia, a learning disability that significantly impacted his ability to read and write.
Despite these considerable obstacles, Mestdagh has not only persevered but thrived. He has transformed his personal experiences into a source of inspiration for others, dedicating his life to philanthropic endeavors and using the power of storytelling to empower young people.
A Michigan native, Mestdagh recently authored a book titled "No Bad Days," a collection of anecdotes shared with him by individuals who have faced their own unique challenges. The book is specifically targeted toward young readers aged 13 to 19, offering them a beacon of hope and practical strategies for overcoming adversity. Mestdagh hopes that the stories within its pages will ignite a sense of motivation and resilience in young readers, encouraging them to confront life’s unexpected difficulties with courage and determination.
Mestdagh believes in the transformative power of storytelling. As he told Fox News Digital, "Through storytelling, I’ve been able to cope with my challenges. Being able to share with other peers of mine what I’m going through allows them to really open up and understand me. Also, for them to express what’s going on in their lives." He understands that sharing personal narratives can foster a sense of connection, empathy, and mutual support, creating a space where individuals feel comfortable sharing their own struggles and finding solace in the experiences of others.
The challenges Mestdagh faced extend beyond his childhood. In middle school, he underwent spinal cord surgery, a procedure that resulted in profound discomfort, impaired mobility, and loss of bladder control. This experience further tested his resilience and required him to adapt to new physical limitations. Throughout these trials, Mestdagh’s parents remained steadfast in their support, tirelessly researching and advocating for the best possible medical care. The family traveled extensively, seeking specialized treatment in Cincinnati and Denver, often undergoing recurring procedures.
Despite the physical and emotional toll of his medical journey, Mestdagh maintains an unwavering positive outlook. "It’s been a little bit of a project in my life, but it’s been an amazing journey that I’ve learned so much from," he said. "I don’t know anything different, and I’ve just had a positive outlook on life."
This optimistic perspective is not simply a passive acceptance of his circumstances; it is an active choice to focus on the possibilities and opportunities that lie ahead. It is this very attitude that fuels his philanthropic endeavors and inspires him to make a difference in the lives of others.
During his senior year in college, Mestdagh established the JT Mestdagh Foundation, an organization dedicated to supporting sick children diagnosed with colorectal issues and disabilities. The foundation provides essential medical supplies, such as drip bags, syringes, and irrigation solutions, to children who require them. Mestdagh recognized a critical gap in healthcare coverage, noting that "The insurance companies don’t see a need to cover it." His foundation steps in to fill this void, ensuring that children receive the necessary medical supplies to manage their conditions effectively.
In addition to providing medical supplies, the JT Mestdagh Foundation offers financial support to families facing the financial burdens associated with their children’s hospital stays. Mestdagh understands that the emotional and physical strain of having a sick child is often compounded by financial difficulties. By providing financial assistance, the foundation aims to alleviate some of the stress and allow families to focus on their child’s well-being. He works directly with doctors to identify patients in need, ensuring that the foundation’s resources are directed to those who can benefit most.
Recently, Mestdagh’s fundraising efforts have yielded remarkable results, raising over $500,000 for children’s charities. These funds will enable the JT Mestdagh Foundation to expand its reach and impact, providing even more support to children and families in need.
The JT Mestdagh Foundation also collaborates with the Ronald McDonald House to provide Tattum Reading Program assistance for children with learning disabilities. The Tattum program, which played a significant role in Mestdagh’s own development, provides specialized reading instruction and support to children struggling with dyslexia and other reading difficulties. "The Tattum program really inspired me to read," he said. "I’ve struggled with reading the word ‘men’s’ for men’s bathroom. I could read it one day and the next I couldn’t. For someone with colorectal issues, that’s a real issue." He understands firsthand the challenges that children with learning disabilities face and is committed to providing them with the resources and support they need to succeed.
Mestdagh attributes his success to the support of his parents, his community, and his faith. He describes his community as his "wolf pack," a group of individuals who provide unwavering encouragement and support. He also emphasizes the importance of his faith in helping him navigate challenges and find new paths forward. "I grew up in a family of great faith in the Lord," he said. "My journey with faith has been very important to me. First and foremost comes my relationship with the Lord. He allows me to see that when one door closes, another opens."
Mestdagh’s faith provides him with a sense of purpose and the belief that even in the face of adversity, there is always hope for a brighter future. He incorporates this belief into the mission of his foundation, stating, "The foundation, we look at it with two main pillars, but with faith in all."
JT Mestdagh’s story is a powerful reminder that challenges can be overcome with resilience, optimism, and a commitment to helping others. His book, "No Bad Days," promises to be a source of inspiration for young readers, offering them practical strategies for navigating life’s inevitable adversities. His philanthropic work through the JT Mestdagh Foundation is making a tangible difference in the lives of children and families facing medical and financial hardships. Through his storytelling, his activism, and his unwavering faith, JT Mestdagh is a true testament to the power of the human spirit. "No Bad Days" will be released on April 1, 2025.
